Charlie Gard Timeline: Parents Announce Death Of Terminally-Ill Baby


The 11-month-old Charlie Gard suffered from an extremely rare genetic condition causing progressive brain damage and muscle weakness, and his parents' long struggle to save him drew an worldwide outpouring of sympathy, including from U.S. President Donald Trump and Pope Francis.

GOSH said Charlie's parents were given false hope by Dr. Michio Hirano, the Columbia University neurology professor who said his nucleoside bypass therapy could cure the boy. Charlie Gard's parents also can't remove him from the hospital room. The hospital had argued that giving Charlie an experimental treatment in America would not help and could make him suffer.

Before their son's case began, Charlie's parents had already reached their initial £1.2m ($1.57m) fundraising target for the baby's treatment and air ambulance travel expenses to the United States.

The news of Charlie's death reverberated across the globe Friday evening.

After months of legal battles, High Court judge Nicholas Francis ruled Thursday that Charlie should be transferred to a hospice and taken off life support after his parents and the hospital failed to agree on an end-of-life care plan.

Saddened to hear of the passing of Charlie Gard. Karen & I offer our prayers & condolences to his loving parents during this hard time.

The couple head to the Supreme Court and three justices dismiss their appeal. "And the case of Charlie Gard is a terrifying warning of what happens when parental rights are removed, and when government officials and courts decide all these decisions related to children".

GOSH was ordered to keep the baby on life support for 24 hours till the European Court of Human Rights (ECHR) would take up the case.

Charlie had a mitochondrial disease that caused progressive muscle weakness and brain damage, which his parents believe could have been treated by experts in the US.

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His plight drew sympathy from US President Donald Trump, who tweeted on July 3 that the US would "be delighted to help".

An American neurosurgeon, who was ready to help treat Charlie, met the infant at GOSH and was also provided with all medical records for further examination.

London's Great Ormond Street Hospital, which had been treating Charlie, said it had been "a uniquely painful and distressing process" for everyone.

Doctors, nurses and other staff at Great Ormond Street Hospital received messages containing death threats. The 11-month-old has a rare genetic condition, and his parents fought hard to receive an experimental treatment.

Pope Francis had tweeted his support for Charlie's parents.

The parents then asked for Gard to be taken to their home for his final days but were overruled by the hospital which said the ventilator keeping him alive was too bulky to fit through their front door. In three months, they exceeded their £1.3 million ($1.65 million) goal to cover the costs, but the hospital stepped in and opposed this effort, stating that it was not in the best interest of their patient.

Charlie died on Friday, July 28, a week before his first birthday.

However, despite global attention, Justice Francis ordered that Charlie be moved to a hospice and be taken off life-support.